Approximately 4,000 children in the United States are diagnosed with leukemia each year. The illness and its treatment can have a devastating effect on family, friends, schoolmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time. Author Nancy Keene provides parents and family members with: - Updates on treatment, including immunotherapy, tailoring drugs dosages to children's genetic profiles, and new methods for dealing with side effects. - Helpful advice on how to cope with medical procedures, hospitalization, school, family, and financial issues. - Suggestions on ways to form a partnership with the medical team. - Poignant and practical stories from family members who have coped with leukemia and its treatments. - Updated resources for medical information, emotional support, and financial assistance. Parents who read this book will find accurate medical information, advice to ease their daily life, and tools to be a strong advocate for their child.
Approximately 4,000 children in the United States are diagnosed with leukemia each year. The illness and its treatment can have a devastating effect on family, friends, schoolmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time. Author Nancy Keene provides parents and family members with: - Updates on treatment, including immunotherapy, tailoring drugs dosages to children's genetic profiles, and new methods for dealing with side effects. - Helpful advice on how to cope with medical procedures, hospitalization, school, family, and financial issues. - Suggestions on ways to form a partnership with the medical team. - Poignant and practical stories from family members who have coped with leukemia and its treatments. - Updated resources for medical information, emotional support, and financial assistance. Parents who read this book will find accurate medical information, advice to ease their daily life, and tools to be a strong advocate for their child.
Introduction
Appendix A: Blood Tests and What They Mean Appendix B: Resource Organizations Appendix C: Books, Websites, and Support Groups Index
Nancy Keene is the mother of a long-term survivor of high-risk acute lymphoblastic leukemia. A well-known writer and advocate for children with cancer, she has written and co-authored many books on topics ranging from childhood cancers to working with your doctor. Her work has appeared in publications such as Reader's Digest, Journal of the American Medical Association, Exceptional Parent, and Coping Magazine. Nancy has been interviewed on National Public Radio (NPR), frequently speaks to professional and parent groups, and has participated in online support groups for parents of children with cancer.
"Insightful... Captivating... This book captures the array of
experiences and advice from providers, parents, extended family,
and most importantly, the patients. I encourage heathcare team
members to read this valuable resource and consider sharing it with
patients and families upon diagnosis." --Carol Roberts, BSN, RN,
CCRC, Association of Pediatric Hematoloy/Oncology Nurses
"A must-have resource for families of childhood leukemia patients
and all library collections." --Julia Reffner, Library Journal
Starred Review
"This book offers rock-solid guidance to parents faced with the
life-altering news that their child has leukemia. Keene offers
guidance and comfort on their difficult journey. This work is
highly recommended as a valuable addition to any library." --Claire
B. Joseph, MS, MA, AHIP (D), Consumer and Patient Health
Information section, Medical Library Association
"Comprehensive, compassionate. It's organization and readability
make it very accessible for parents and others touched by the
frightening specter of childhood leukemia, and a must-have addition
to any library or resource center collecting pediatric consumer
health titles." --Nancy C. Seeger, Journal of Consumer Health on
the Internet
"Childhood Leukemia leaves no stone unturned when helping readers
understand what to expect. Using an empathetic approach, it is
written in clear, comprehensive language. I recommend that this
book become a part of any library's consumer or health care
collection." --Ansley Stuart, Allied Health Sciences Librarian
"Childhood Leukemia is informative, realistic, and accurate. The
author handles the topic with transparency, compassion, and a
genuine desire to get factual and helpful information into the
hands of those going through this disease with their child."
--Cecilia C. Railey, Hospital Libraries section, Medical Library
Association
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