With the goal of alleviating the paucity of knowledge about advanced dementia, and helping to improve the care and services that are increasingly needed for the growing numbers of people living with dementia-type diseases, this book provides evidence-based measurement scales for use by researchers and care providers who are seeking to improve our understanding of the final stages of this disease. Now collected in a single place are the best available research tools for use with this unique population, accompanied by knowledgeable reviews by the book's internationally recognized authors and by the original journal articles that explain each scale s development and validity.
All scales presented in this unique resource have been proven effective in eliciting meaningful data from study subjects, patients, and long-term care residents whose communication difficulties reduce their ability to self-report or respond in traditionally measured ways. These customized scales are useful for assessing the following domains in late-stage or end-of-life dementia care: Dementia severity, Satisfaction with care, Symptom management, Comfort during dying, Quality of life, Activity involvement, Discomfort, Pain, Quality of visits, Agitation, Rejection of care
With the goal of alleviating the paucity of knowledge about advanced dementia, and helping to improve the care and services that are increasingly needed for the growing numbers of people living with dementia-type diseases, this book provides evidence-based measurement scales for use by researchers and care providers who are seeking to improve our understanding of the final stages of this disease. Now collected in a single place are the best available research tools for use with this unique population, accompanied by knowledgeable reviews by the book's internationally recognized authors and by the original journal articles that explain each scale s development and validity.
All scales presented in this unique resource have been proven effective in eliciting meaningful data from study subjects, patients, and long-term care residents whose communication difficulties reduce their ability to self-report or respond in traditionally measured ways. These customized scales are useful for assessing the following domains in late-stage or end-of-life dementia care: Dementia severity, Satisfaction with care, Symptom management, Comfort during dying, Quality of life, Activity involvement, Discomfort, Pain, Quality of visits, Agitation, Rejection of care
I. Research Issues in Advanced Dementia
Dr. Ladislav Volicer is currently the Courtesy
Full Professor at the School of Aging Studies, University of South
Florida, Tampa, FL, USA, Visiting Professor at the 3rd Medical
Faculty, Charles University, Prague, Czech Republic and Adjunct
Professor at the University of Western Sydney. In 1979, he moved
his laboratory to the E.N.Rogers Memorial Veterans Hospital in
Bedford, MA and got involved in research and care for individuals
with dementia. As a medical director, he established one of the
first Dementia Special Care Units and introduced the concept of
structured palliative care for patients with advanced dementia.
Goals of care on this unit were quality of life, dignity and
comfort instead of prolongation of life at all costs. Dr. Volicer
investigated various aspects of dementia care, including
behavioural symptoms, medical complications and eating
difficulties. He is recognized as an international expert on
advanced dementia care.
Dr. Ann C. Hurley is currently Senior Nurse
Scientist, Brigham and Women s Hospital Center for Nursing
Excellence, Boston MA, USA. She has held clinical, educational,
administrative, and research positions at several Academic Medical
Centers in the Boston, Massachusetts area, USA. Concurrent with
those positions, she was adjunct faculty in nursing programs at
Boston University, Boston College, and Northeastern University,
USA. Dr. Hurley was the Associate Director of the Geriatric
Research Education Clinical Center at the Edith Nurse Rogers
Memorial Veterans Hospital in Bedford, MA and Director of the
Education and Information Transfer Core of the Boston University
Alzheimer s Disease Center. She has worked with Dr. Volicer for
over 20 years; collaborating in a program of interdisciplinary
research targeted to improve care for persons with advanced
dementia and disseminating new knowledge in peer-reviewed journals,
chapters and books.
"The authors of this book... pioneered research on palliative care in dementia. They also recognized that to advance the field, researchers need tools to produce evidence that can inform care. This book presents decades of important work on highly relevant concepts that have been made operational by specific scales." (from the Foreword)-- (12/12/2014)
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