This comprehensive, interdisciplinary handbook presents the latest research in the study, assessment, treatment, and understanding of intellectual and developmental disabilities.
The past five decades have resulted in dramatic breakthroughs in the understanding of intellectual and developmental disabilities (IDD). Editor-in-Chief Laraine Masters Glidden and her editorial team provide an overview of the historical foundations of the field of IDD as well as up-to-date material on clinical diagnosis, assessment, interventions, and treatments for such conditions.
It goes on to address legal, ethical, and educational issues; and other social issues that affect the lives of people with IDD, including family impact and adjustment, relationships and parenting, spirituality, residential and caretaking services, maltreatment and criminal justice issues, stigma and ableism, health, and aging.
Chapters address the etiology and treatment of specific conditions (including Down syndrome, fragile X syndrome, other genetic and chromosomal conditions, autism spectrum disorder, acquired brain injury, cerebral palsy, and fetal alcohol spectrum disorders) as well as functioning in multiple domains and throughout the lifespan. Contributing causes to IDD are explored within various contexts such as culture, race, ethnicity, and socioeconomic status.
This comprehensive, interdisciplinary handbook presents the latest research in the study, assessment, treatment, and understanding of intellectual and developmental disabilities.
The past five decades have resulted in dramatic breakthroughs in the understanding of intellectual and developmental disabilities (IDD). Editor-in-Chief Laraine Masters Glidden and her editorial team provide an overview of the historical foundations of the field of IDD as well as up-to-date material on clinical diagnosis, assessment, interventions, and treatments for such conditions.
It goes on to address legal, ethical, and educational issues; and other social issues that affect the lives of people with IDD, including family impact and adjustment, relationships and parenting, spirituality, residential and caretaking services, maltreatment and criminal justice issues, stigma and ableism, health, and aging.
Chapters address the etiology and treatment of specific conditions (including Down syndrome, fragile X syndrome, other genetic and chromosomal conditions, autism spectrum disorder, acquired brain injury, cerebral palsy, and fetal alcohol spectrum disorders) as well as functioning in multiple domains and throughout the lifespan. Contributing causes to IDD are explored within various contexts such as culture, race, ethnicity, and socioeconomic status.
Introduction
Volume 1. Foundations
Part I. Origins and Overviews
1. Historical Foundations of the Field of Intellectual and
Developmental Disabilities
James W. Trent, Jr.
2. Intellectual Disability, Developmental Disabilities, and the
Field of Intellectual and Developmental Disabilities
Robert L. Schalock and Ruth Luckasson
3. Legal, Ethical, and Social Issues Affecting the Lives of
People With Intellectual and Developmental
Disabilities
Katherine E. MacDonald, Micah FialkaFeldman,
Alison Barkoff, and Molly Burgdorf
Part II. Causality and Variation
4. Epidemiology of Intellectual and Developmental
Disabilities
Maureen S. Durkin and Eric Rubenstein
5. Behavioral Phenotypes and Genomic Testing: Scientific and
Societal Implications
Elisabeth M. Dykens
6. Down Syndrome
Robert M. Hodapp and Deborah J. Fidler
7. Fragile X Syndrome and Associated Disorders
Leonard J. Abbeduto, Angela John Thurman, Laura
del Hoyo Soriano, and Jessica Klusek
8. Chromosome 15 Syndromes Associated With Intellectual
and Developmental Disabilities
Charlotte DiStefano and Shafali S. Jeste
9. The Autism Spectrum: Diagnosis and Epidemiology
Melanie Pellecchia, Kelsey S. Dickson, Sarah F. Vejnoska,
and Aubyn C. Stahmer
10. Acquired Brain Injury: A Developmental Perspective
Lisa Jacobson and Gwendolyn Gerner
11. Cerebral Palsy: Epidemiology, Neurobiology, and Lifespan
Management
Eric M. Chin, Tara L. Johnson, and Alexander H. Hoon,
Jr.
12. Fetal Alcohol Spectrum Disorders and Other Teratogenic
Conditions
Sarah N. Mattson, Lauren R. Doyle, and Leila Glass
13. Linking Poverty and Developmental Disabilities
Theodore D. Wachs and Kathleen S. Gorman
14. Culture, Race, and Ethnicity and Intellectual and Developmental
Disabilities
Sandy Magaña and Sandra B. Vanegas
Part III. Assessment, Diagnosis, and Labeling
15. Theories and Measurement of Intelligence
Randy G. Floyd, Ryan L. Farmer, W. Joel Schneider, and Kevin S.
McGrew
16. Theories and Measurement of Adaptive Behavior
Marc J. Tassé and Giulia Balboni
17. Intellectual and Developmental Disabilities and Mental
Health
Yona Lunsky, Peter E. Langdon, Brianne Redquest, and Jane
Summers
18. Attitudes, Stigma, and Ableism Toward
People With Intellectual Disability
Kristin A. Dell’Armo and Marc J. Tassé
Index
Volume 2. Clinical and Educational Implications: Prevention,
Intervention, and Treatment
Part I. Evidence Based Practice and Treatment
1. Early Intervention for Children with Intellectual and
Developmental Disabilities
Laura Lee McIntyre, Megan Kunze, Hannah Barton, and
Mathew Luehring
2. Applied Behavioral Analysis and Intellectual and Developmental
Disabilities
Wendy Machalicek, Allaina Douglas, Christine Drew,
Hannah Barton, Buket Erturk, and
Tasia Brafford
3. Psychoeducational Approaches to Instruction of
Students with Intellectual and Developmental
Disabilities
Michael L. Wehmeyer
4. Special Education Law: Programming and Placement
Mitchell L. Yell, James C. Collins, Mickey Losinski, and
Michael A. Couvillon
5. Special Education Curriculum and Pedagogy
Susan R. Copeland and Megan M. Griffin
6. The Autism Spectrum: Intervention, Treatment, and
Services
Amanda C. Gulsrud and Patricia Renno
7. Diagnosis and Management of Cerebral Palsy and Other Types of
Pediatric Brain Injury
Kathleen M. Friel, Claudio L. Ferre, and Andrew M.
Gordon
8. Controversial Treatments, Therapies, and Theories in Science and
Professional Practice in the Field of Intellectual and
Developmental Disabilities
Richard M. Foxx
Part II. Lifespan Issues
9. Family Impact and Adjustment Across the Lifespan: Parents of
Children with Intellectual and Developmental
Disabilities
Laraine Masters Glidden, Frank J. Floyd, Richard P. Hastings, and
Marsha R. Mailick
10. Family Impact and Adjustment Across the Lifespan: Siblings of
Individuals with Intellectual and Developmental
Disabilities
Gael I. Orsmond and Kristin A. Long
11. The Transition to Adulthood for Individuals with
Intellectual and Developmental Disabilities
Leann Smith DaWalt, Julie Lounds Taylor, and
Marsha R. Mailick
12. Intellectual and Developmental Disabilities and the Criminal
Justice System
J. Gregory Olley and Ann W. Cox
13. Achieving Competitive Integrated Employment for
Individuals with Intellectual and Developmental
Disabilities
Paul Wehman, Carol Schall, Lauren Avellone,
Alissa Molinelli Brooke, Valerie Brooke, Jennifer
McDonough, and Holly Whittenburg
14. Residential Services for Adults with Intellectual and
Developmental Disabilities
K. Charlie Lakin, Amy S. Hewitt, Heidi
J. Eschenbacher, and Jerry W. Smith
15. Reconsidering Sexuality, Relationships, and Parenthood for
Adults with Intellectual Disability
David McConnell, Marjorie Aunos, Laura Pacheco, and
Lyndsey Hahn
16. Spirituality and Supports for Individuals with
Intellectual and Developmental Disabilities and Their
Families
Erik W. Carter
17. Maltreatment of Individuals with Intellectual and
Developmental Disabilities: A Lifespan View
Linda Hickson and Ishita Khemka
18. Health of Individuals with Intellectual and Developmental
Disabilities: A Lifespan View
Susan M. Havercamp, Rose E. Nevill, and Jill
Crane
19. Aging in Individuals with Intellectual and Developmental
Disabilities
Tamar Heller and Lieke van Heumen
20. Summary and Future Directions: Where We Have Been, Where We
Are, Where We Are Going
Laraine Masters Glidden, Leonard J. Abbeduto, Laura Lee
McIntyre, and Marc J. Tassé
Index
Laraine Masters
Glidden, PhD, Editor-in-Chief, is a
distinguished professor emerita in the Department of
Psychology at St. Mary's College of Maryland. She earned her
BA from Mount Holyoke College in 1964, going on to
pursue graduate study in experimental
psychology, including research in classical conditioning
and learning and memory. She earned her PhD from the
University of Illinois in 1970. Dr. Glidden has maintained an
active research, teaching, and administrative
career over the past 50 years. Grants from the National
Institute of Child Health and Human Development (NICHD), the
National Institute of Mental Health, the National Science
Foundation and other organizations helped to fund her research,
including the longitudinal Project Parenting Study, funded by the
NICHD for 25 years. Dr. Glidden’s research, writing, editing,
and series editing work has resulted in the
publication of one authored book and 17 edited books; additionally,
she has published 20 book chapters and 79 peer-reviewed
articles and book reviews. She has received multiple
awards and recognitions for her contributions to the field of
intellectual and developmental disabilities, including The Arc
Distinguished Research Award in 2008, an appointment as a Global
Scholar of Special Olympics International in 2011, and the Edgar A.
Doll Award for Lifetime Achievements in Intellectual and
Developmental Disabilities from APA Division 33 in 2015.
Leonard Abbeduto, PhD, Associate Editor, is
the director of the MIND Institute, the Tsakopoulos-Vismara
Endowed Chair, and professor in the Department of Psychiatry and
Behavioral Sciences at the University of California, Davis.
Dr. Abbeduto’s research is focused on the development of
language across the lifespan in individuals with intellectual and
developmental disabilities and on the family context for language
development. Dr. Abbeduto has published more than 200
articles, chapters, reviews, and books on fragile X syndrome,
autism, Down syndrome, and child development. His program of
research has been funded nearly continuously by NIH since 1985.
Dr. Abbeduto has received numerous awards, including the
Emil H. Steiger Award for Distinguished Teaching from the
University of Wisconsin-Madison; the Faculty Stewardship Award from
the UC Davis; the Enid and William Rosen Research Award from the
National Fragile X Foundation; and the Edgar A. Doll Award for
Distinguished Research Contribution from APA Division 33.
Laura Lee McIntyre, PhD, Associate Editor, is
professor and head of the Department of Special Education and
Clinical Sciences and director of the Prevention Science Institute
at the University of Oregon. Dr. McIntyre's research involves early
identification and treatment of childhood developmental and
behavioral problems, with an emphasis on the multiple systems of
care that support children (e.g., families, schools, health care).
Her research has received funding from the Eunice Kennedy Shriver
National Institute of Child Health and Human Development; the
National Institute of Mental Health; the National Institute of
Disability, Independent Living, and Rehabilitation Research; and
the U.S. Department of Education/Institute of Education Sciences.
Dr. McIntyre is a past president of the American Psychological
Association’s Division on Intellectual and Developmental
Disabilities/Autism Spectrum Disorder (Division 33) and currently
serves as the president of the American Association on Intellectual
and Developmental Disabilities.
Marc J. Tassé, PhD, Associate Editor, is a
professor in the Department of Psychology and the Department of
Psychiatry and Behavioral Health at The Ohio State University, and
the director of the Ohio State Nisonger Center, a
University Center for Excellence in Developmental Disabilities. He
has more than 30 years of research and clinical experience in the
fields of intellectual disability (ID), autism spectrum disorder
(ASD), and other related neurodevelopmental
disorders. Dr. Tassé has been involved in the development
of a number of standardized assessment scales for people with
ID/ASD, including the Diagnostic Adaptive Behavior Scale, Supports
Intensity Scale for Children, Supports Intensity Scale for
Adults, Nisonger Child Behavior Rating Form, and the
Quebec Adaptive Behavior Scale. His publications include more than
150 articles in peer-reviewed journals, book chapters, and books.
His work has been recognized by the American Association on
Intellectual and Developmental Disabilities (AAIDD; Exceptional
Service Award: 2007, 2009, & 2011) and the APA (Division 33’s John
W. Jacobson Award). He is a past President of the AAIDD
(2012-2013).
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